Neurological Conditions Collective Advocacy
Do you have a neurological condition?
- Do you live in Edinburgh or the Lothians or access social care services there?
- You can get involved in this Collective Advocacy project to have your voice heard. You’ll meet like-minded people and help make sure that people with neurological conditions have their say about the provision of social care services.
About the project
This is a Collective Advocacy project that will help you to express your views, wishes and lived experience. Your voice will help to improve social care services for people with neurological conditions and increase understanding and information about living with these conditions.
Being involved will also help you to increase your awareness and understanding of your rights and options. People who participate in Collective Advocacy at CAPS value the sense of community and purpose it creates and how it helps to reduce isolation. By getting involved you will meet with others who have neurological conditions in East Lothian, Midlothian, West Lothian or City of Edinburgh, in-person or online, whichever suits you best.
What is Collective Advocacy?
Collective Advocacy is where groups of people with shared identities, experiences and challenges come together to have a stronger voice and bring about change. Participants share ideas on how to tackle common difficulties and take collective action. Collective Advocacy helps to address power imbalances and challenge stigma and discrimination. Collective Advocacy groups decide together what they wish to work on. In the past, groups have worked to: plan, and design workshops; deliver workshops to professionals, students and members of the public; attend planning and strategy meetings to add your voice in decision making platforms; create resources to raise awareness.
In this project, you will come together with other people that have neurological conditions to bring about positive change. You will work together to ensure that people making decisions about social care for those with neurological conditions hear the voices of the people who access these services. And that they can take your views into account when designing and implementing them. You’re free to choose your own level of involvement and our Collective Advocacy workers, Angharad and Steve, will work with people to find the best location and time to suit the group.
“I’ve gained more confidence, done things I thought I’d never be able to do”.
“Meeting with government ministers and decision makers that are influential to power allows us to have our experiences, ideas and concerns shared directly from a lived experience perspective”.
What do we mean by neurological condition?
We know neurological conditions are varied and have many different presentations. To be involved in this project you should have a neurological condition; this includes all conditions affecting the central and peripheral nervous system for example multiple sclerosis, Parkinson’s, epilepsy, MND etc.
How do I get involved?
Contact neuro@capsadvocacy.org or text or call Steve on 07929 751 911.
Contact neuro@capsadvocacy.org or text or call Steve on 07929 751 911